There’s still time to make a difference for children living with neuromuscular disease.
With the end of the financial year just around the corner, your donation today will help us continue delivering vital support to children and families across Australia.
Muscular dystrophy changes lives — but so can you. Every donation helps us fund services like our Neuromuscular Nurse Consultant at the Royal Children’s Hospital, providing care, guidance and hope when families need it most.
Donate today and help us reach our goal — so no child has to go without the support they deserve.
We know how overwhelming it can be when a child is diagnosed with a life-altering condition. For families, the weeks and months that follow are filled with questions, appointments, and uncertainty. That’s why our services matter — and why we urgently need your support.
Your donation is secure and protected.
We urgently need your help to continue our vital support services for children living with neuromuscular disease.
Since 2008, MDA has been working in partnership with the Royal Children's Hospital, by supporting the funding of Dani Villano, Neuromuscular Nurse Consultant. This position was the first of its kind in Australia, focusing specifically on the needs of children with NMD.
Can you imagine the extra stress of having to arrange countless medical appointments, shortly after your child is diagnosed with a serious neuromuscular condition?
Children affected by NMD need regular check-ups. For their parents, this means having to make multiple trips to attend individual specialist appointments. For most families it can prove to be almost impossible to fit these appointments around work and family life.
Take the case of Deana and her son, Dylan. Deana says, “Dylan was just 2 years old when he was diagnosed with Duchenne."
“You could call it mother’s instinct, but I sensed something wasn’t right. I persisted and kept pushing for answers. We had several appointments with our GP, doctors and clinicians.”
“Receiving the diagnosis was the biggest shock of our lives. We all went through the grieving process, of why us, the anger and upset. Then we realised we needed to focus on the future and ensuring we live every day to the fullest.”
Your donation will help to support children like Dylan who has benefitted from the support of Dani.
Back in 2008 the clinic started with just 40 to 60 patients. Fast forward to today and the clinic is seeing close to 600 patients.
Dani says, "We do not to turn people away, but we have reached a point where we must delay visits due to the overwhelming demand on the clinic."
Deana describes the challenges they faced ahead, “Dylan is doing well. However, he’s almost 17 and we worry about what the future brings, moving into the adult healthcare system is going to be completely different.”
“We’re so grateful for the care Dylan has received from Dani and the Neuromuscular Clinic. The warmness she gives. We’d be lost without her and I’m certain we would have slipped through the cracks.”
When you donate today, you’re not just giving to a child with muscular dystrophy; you’re also supporting their family, parents, and their carers too!
Muscular dystrophy and atrophy affects more than 42,500 Australians
First signs of symptoms & diagnosis can happen in early children to well into adulthood.
We respond to over 180 new enquiries from patients, carers, and families each year
With your support we can continue to provide essential programs and services
It's heartbreaking to watch the people you love lose mobility and independence, to this disease that has no cure.
That’s what makes our services are so vital.
Your contributions have helped to fund vital – potentially life-saving – research and deliver essential programs and services that significantly improve the lives of all our NMD community.
Many of these services, like the MDA Neuromuscular Nurse Consultant are not only considered to be best practice but also acknowledged for significantly improving the continuing care provided to some of our youngest members of the NMD community.
Whilst we continue our search for a cure, we urgently need generous donations to ensure children in our NMD community receive the treatment they need – and deserve.
That’s why your ongoing support is so important.
Thank you to our amazing supporters, together we are building a brighter future for people with muscular dystrophy.
Your donation is secure and protected.
We urgently need your help to continue our vital support services for children living with neuromuscular disease.
Since 2008, MDA has been working in partnership with the Royal Children's Hospital, by supporting the funding of Dani Villano, Neuromuscular Nurse Consultant. This position was the first of its kind in Australia, focusing specifically on the needs of children with NMD.
There’s still time to make a difference for children living with neuromuscular disease.
With the end of the financial year just around the corner, your donation today will help us continue delivering vital support to children and families across Australia.
Muscular dystrophy changes lives — but so can you. Every donation helps us fund services like our Neuromuscular Nurse Consultant at the Royal Children’s Hospital, providing care, guidance and hope when families need it most.
Donate today and help us reach our goal — so no child has to go without the support they deserve.
We know how overwhelming it can be when a child is diagnosed with a life-altering condition. For families, the weeks and months that follow are filled with questions, appointments, and uncertainty. That’s why our services matter — and why we urgently need your support.
This June, please show your support for our youngest members of the NMD community.
Many of our services, like the MDA Neuromuscular Nurse Consultant are not only considered to be best practice but also acknowledged for significantly improving the continuing care provided to some of our youngest members of the NMD community.
That’s why ongoing support is so important.
Muscular dystrophy affects more than 42,500 Australians. It's a collection of debilitating genetic conditions which cause muscle wasting, affecting children and adults alike. They shorten life spans, affect movement and even the ability to swallow and breathe.
Can you imagine the extra stress of having to arrange countless medical appointments, shortly after your child is diagnosed with a serious neuromuscular condition?
Children affected by NMD need regular check-ups. For their parents, this means having to make multiple trips to attend individual specialist appointments. For most families it can prove to be almost impossible to fit these appointments around work and family life.
Take the case of Deana and her son, Dylan. Deana says, “Dylan was just 2 years old when he was diagnosed with Duchenne."
“You could call it mother’s instinct, but I sensed something wasn’t right. I persisted and kept pushing for answers. We had several appointments with our GP, doctors and clinicians.”
“Receiving the diagnosis was the biggest shock of our lives. We all went through the grieving process, of why us, the anger and upset. Then we realised we needed to focus on the future and ensuring we live every day to the fullest.”
Your donation will help to support children like Dylan who has benefitted from the support of Dani.
Back in 2008 the clinic started with just 40 to 60 patients. Fast forward to today and the clinic is seeing close to 600 patients.
Dani says, "We do not to turn people away, but we have reached a point where we must delay visits due to the overwhelming demand on the clinic."
Deana describes the challenges they faced ahead, “Dylan is doing well. However, he’s almost 17 and we worry about what the future brings, moving into the adult healthcare system is going to be completely different.”
“We’re so grateful for the care Dylan has received from Dani and the Neuromuscular Clinic. The warmness she gives. We’d be lost without her and I’m certain we would have slipped through the cracks.”
When you donate today, you’re not just giving to a child with muscular dystrophy; you’re also supporting their family, parents, and their carers too!
Muscular dystrophy and atrophy affects more than 42,500 Australians
First signs of symptoms & diagnosis can happen in early children to well into adulthood.
We respond to over 180 new enquiries from patients, carers, and families each year
With your support we can continue to provide essential programs and services
It's heartbreaking to watch the people you love lose mobility and independence, to this disease that has no cure.
That’s what makes our services are so vital.
Your contributions have helped to fund vital – potentially life-saving – research and deliver essential programs and services that significantly improve the lives of all our NMD community.
Many of these services, like the MDA Neuromuscular Nurse Consultant are not only considered to be best practice but also acknowledged for significantly improving the continuing care provided to some of our youngest members of the NMD community.
Whilst we continue our search for a cure, we urgently need generous donations to ensure children in our NMD community receive the treatment they need – and deserve.
That’s why your ongoing support is so important.
Thank you to our amazing supporters, together we are building a brighter future for people with muscular dystrophy.
